Isabella Michele Due 7/11/2011

Tuesday, February 22, 2011

Hypo-plastic Right Ventricle Syndrome (HRHS)

This is what they think Peanut has at this point. I am really hoping they're wrong. But if not, I am bound and determined to handle this like a champ. (God(s) give me strength!)

They want me to deliver at Abbott Northwestern Hospital in Minneapolis, which is attached to Children's  Hospital via tunnel. When the baby is born they will take her right away for surgery. I don't yet know what that will entail at this point, but in 3 weeks when I see the neonatal cardiac specialist I should know quite a bit more.

I haven't yet read up on HRHS, I just discussed it over the phone with the genetic counselor from the Perinatal Clinic. She is just awesome and was very reassuring. She is, however, suggesting I have an Amnio done to check for other possible defects. I will agree to that, but not until the baby is completely viable, so, I figure no sooner than 30 weeks. The genetic counselor said that it is completely fine to wait, and wont harm the baby in any way. I believe the risk of miscarriage with Amnio is about 1 in 200 babies, but waiting until she is viable makes loss significantly less likely.

I am trying as best I can to relax and not worry too much about this. I know that could affect the baby as well. I did however want to update those who want to know.

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